Dietz Syndrome (LDS): Symptoms & Prognosis
What can I expect if I have this condition?
If you have Loeys-Dietz syndrome, you can expect a lot of medical appointments and the need to have a thorough understanding of your body. LDS affects everyone differently, so you’ll have your own journey with the syndrome. You’ll work closely with your team of healthcare providers to manage LDS as it changes.
LDS is still a relatively new disease. Experts are actively studying how it affects your health and life expectancy. So far, research shows that earlier detection and preventive treatments are helping people with LDS live longer.
Cardiovascular impairment is still the most common cause of death in LDS. This is mainly due to sudden death in undiagnosed cases. It’s also more likely to affect people who get a late LDS diagnosis.
LDS and mental healthSeveral aspects of living with Loeys-Dietz syndrome can impact your mental health and quality of life, like:
Because of this, you may be at higher risk of:
Caregivers and family members of people with LDS are also at risk of these mental health issues.
Be sure to seek help from a mental health specialist (like a psychologist) if you’re experiencing distress related to LDS. Your mental health is just as important as your physical health. Joining a support group may also help.