Danlos Syndrome: Causes, Symptoms and Treatment
How is this condition treated, and is it curable?
Vascular EDS is not curable. This condition is genetic, meaning that it’s a lifelong condition. Because it isn’t curable, healthcare providers will focus on treating and minimizing the impact of any symptoms.
What medications/treatments are used?People with vascular Ehlers-Danlos syndrome have a high risk of developing dangerous internal bleeding because of aneurysms and torn arteries. Because of this, you may need regular medical screenings to look for aneurysms if you have this condition. In some cases, you may need surgery to repair internal injuries or aneurysms. Pregnancy can also lead to a high risk of severe or life-threatening complications from this condition, such as rupture of the uterus or severe bleeding.
A healthcare provider is the best person to explain the potential medications, treatments and procedures that you may need. They can best explain what's happening in your situation, taking into account your circumstances and the details of the care you need or receive.
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Complications/side effects of the treatmentBecause this condition causes you to have very fragile tissues, you will also have a high risk of bleeding. You may also have trouble recovering after surgery for this same reason. A healthcare provider is the best person to explain the potential complications and risks that you may face.
How to take care of myself/manage symptoms?Vascular EDS is a complicated condition that needs close medical monitoring and regular visits to one or more healthcare providers. Because of how complex this condition is, it’s not something you can take care or manage without help from a healthcare provider.
How soon after treatment will I feel better?A healthcare provider is the best person to explain what you can expect from this condition, especially if you need treatment to repair an injury or other problem.