Marfan Syndrome: Symptoms, Causes & Treatment
What can I expect if I have Marfan syndrome?
If you have Marfan syndrome, you can expect a lot of medical appointments and needing to have a thorough understanding of your body. MFS affects everyone differently, so you’ll have your own journey with the syndrome. You’ll work closely with your team of healthcare providers to manage MFS as it changes.
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Due to increased knowledge of MFS and advanced medical treatments, people with MFS live much longer than they did before the 1970s. The life expectancy of someone with MFS is now almost the same as it is for people without MFS. But life expectancy is significantly lower in males than in females.
Cardiovascular impairment is still the most common cause of death in MFS. This is mainly due to sudden death in undiagnosed cases of MFS. It’s also more likely to affect people who get a late MFS diagnosis.
MFS and mental healthSeveral aspects of living with Marfan syndrome can impact your mental health and quality of life, like:
Because of this, you may be at higher risk of:
Caregivers and family members of people with MFS are also at risk of these mental health issues.
Be sure to seek help from a mental health specialist (like a psychologist) if you’re experiencing distress related to MFS. Your mental health is just as important as your physical health. Joining a support group may also help.